This web site has been formed to provide communication between patients and family members of rare genetic diseases Cowdens Syndrome and Bannayan Riley Ruvalcaba Syndrome. Both diseases are caused by mutations of the PTEN gene.

To join this group you must have Cowdens Syndrome, Bannayan Riley Ruvalcaba Syndrome or be a family member to someone with one of these diseases. We also welcome medical professionals. 

This group has medical advisors which are the premier researchers in both diseases. 

Researchers are currently conducting present and future studies in PTEN diseases. For details on the studies please read our "Special Notice" section.

This group is intended to work with your doctor, not to take the place of one. Please confirm all information you hear at this site with your doctor.

If you are not interested in being a member, but just need information on the syndromes please write to the webmaster at rosilita@comcast.net

THANK YOU FOR VISITING